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[–]Tovasshi 9 insightful - 1 fun9 insightful - 0 fun10 insightful - 1 fun -  (5 children)

The vast majority of "autistic" adults in online communities are self-diagnosed.

Whenever I see the discussion of gender come up, it's the majority of those that ID as non-binary or trans are the self-DXers.

Most of those that are diagnosed I find are more laid back and don't actually care.

I think what people are assuming is autism in relation to gender bullshit is actually one of many personality disorders that mimic ASD. I saw one discussion go south when an autist pointed that many of the self-DXers were describing symptoms of schizophrenia/ schizotypal personality traits and not ASD in one of their many "does anyone else" posts.

[–]RestingWitchface 5 insightful - 1 fun5 insightful - 0 fun6 insightful - 1 fun -  (3 children)

Yeah... one of the reasons I really wanted to be professionally diagnosed is because I have latched onto various diagnoses before when I was going through mental health problems and trying to figure out what was wrong with me. I wanted to have that certainty and clarity for myself. I understand that there can be really high barriers to getting diagnosed, such as lack of finances or lack of knowledge about autism in females among professionals. But I also feel uneasy with the large numbers of self-diagnosed people in the community who are speaking over and on behalf of autistic people.

[–]Tovasshi 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (2 children)

And I have the utmost sympathy for people in your position. I bounced around from therapist to therapist trying to find out what was "wrong" with me. I paid out of pocket to a specialist for my diagnosis. The process really opened my eyes with how complicated it really was. I was screened for SPD because he said in adult women, we mask a lot and the disorder looks very similar to others. He's corrected a lot of misdiagnoses in the past from other disorders to ASD based on a lot of nuance. One example he gave was a woman that was diagnosed with BPD but he noticed her meltdowns subsided when whatever triggered her was removed. In BPD patients, the meltdown continues because its an emotional release, not a sensory meltdown. But they look the same at first.

I myself was screened for SPD to rule it out because a lot of my symptons could have placed me in that category.

Overall it was 5 hours of tests, interviews and questionnaires plus those results going to a board of professionals for me to be diagnosed with ASD with ADHD.

When I see someone who suspects they have ASD, I deeply feel for them and hope they get their DX and some peace of mind.

When I see someone that self-DXed... I lump them in non-binary and stargender people.

[–]RestingWitchface 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (0 children)

I totally relate! I actually thought I had BPD for a long time (just my own suspicions, I was never diagnosed) but after a while it didn't really fit anymore. I hadn't even considered autism until someone mentioned that autistic women are often misdiagnosed with BPD and I started to look into it. It was a better fit immediately, going right back to early childhood. In the end, I had 8 hours of testing and assessment so I have that absolute certainty, and honestly I've been doing so much better now that I'm not so confused all the time. I really wish for everyone's sake that there would be better systems in place to get everyone the right help they need. It's all such a mess right now.