There's typically a peak in Lyme disease cases in June and July: The experience was "quite disconcerting," he said, and in line with predictions that we're in for a bad tick year. "We have to be extremely vigilant," he said. "We're going to have higher than average tick activity this year."

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[–]GrantingGrace 3 insightful - 1 fun3 insightful - 0 fun4 insightful - 1 fun -  (3 children)

It's kind of incredible to see that written out. I mean, I don't know anyone else who has the same thing I have and everything you have written I have. I haven't been diagnosed with it, I was told I needed psychiatric help when I went to the doctor with the list of issues I had, dated carefully with onset as well as times it seems to be worse. It took me a long time to document that, because of the memory issues. When I first came down with it, I was in bed for two weeks and a few times I woke up with my heart almost no longer beating at all, it was a very bizarre sensation. My husband thought I was going to die. Bad stuff. My life has not been the same since; although I find some amount of relief by using dl phenylalinine, VitD, ashwaghanda, NAC, and when my cycle comes I have to take a lot of bovine supplements to counter the loss of red blood cells, severe anemia, serious oxygen reduction. It's been difficult with my husband not fully understanding but I think after three years of watching me go through feeling a little better and doing things to crashing he gets it's not an act. What a misery. I abuse this work out supplement called Mr Hyde in order to push through the pain and get something done on a regular basis. The caffeine and whatever else is in it does wonders for pain. Far better than any over the counter painkiller. On really bad days, edibles save me, but I do not enjoy the sensation so I avoid it unless its extreme. Magnesium and methylated B complex help a lot too; but the problem is my memory is so bad that I can't remember to take the right things on a regular basis to help maintain a stable mental state or manage physical pain. You'd think to just write it down, but I forget to do that too.

I'm currently doing a juice fast to help combat this, annual fasting usually helps but this year I decided I needed the nutrients too much to do a full on water fast. I don't have a time set for this, I guess when I get too thin I will stop. I always feel so much better fasting from solids; I guess it's because the body can take out the toxic waste from the bacteria.

How do you know you've killed the bartonella, EBV, protomyxzoa rheumatica?

When you first rifed twice a week, what were your reactions? How bad were you at that time in your condition? I'm at a moderate instead of extreme level of pain in mornings and it reduces to maybe a 3-6 during the day. I'm beginning to have serious issues with my spine/pelvis (the same burning that stays in my feet and calves is now in my spine and pelvis) and I really haven't been able to reduce it with chiropractic care, stretching, rehabilitative exercises, nothing. I am suspecting the little devils are eating all my supportive tissue and I'm not making it back fast enough, Idk. I would really like to be able to walk like I'm not in my 90's. My body's frail condition is emotionally overwhelming when I give myself time to think about it, which I try not to. I used to be so strong that I accidentally broke my husband's ribs by play wrestling. Now I can barely pick anything up at all. And it seems to be getting worse.

Is there a way to get the machine for less of an expense? I really can't fork out a few grand. I also, as I'm sure you understand, am thinking snake oil, because I've tried many things. It's so expensive. :(

Really appreciate you writing. It is nice to see I'm not the only one who should be dx'ed as a "crazy person" for their pain. The people who created this and released it are evil beyond belief.

Hope you continue to do better!

[–]_baal_ 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (2 children)

Sorry about the late reply. I've been off of this site for a while now. I'd recommend kratom for pain, red thai is my favorite strain right now, and it helps a ton. I pretty much judge whether a pathogen is sufficiently dead or not by whether or not I can trigger a herx/die-off reaction. I'm up to 20 minutes per frequency on bartonella. Not sure how much further I'll stretch it, but I've heard of people persisting at 45 minutes on a single frequency. I'm sort of doing this all by ear.

Yes, early on in my rifing experience, the die off was difficult because my detox pathways weren't doing well, and I was loaded up with toxins. I should have done a bunch of detox rife sessions before killing anything, but I'm stubborn and wanted to hit the root cause of my issues with everything I had. It can be mitigated though with a sufficient detox protocol. I take a lot of binders if I feel a particularly heavy herx coming on, activated charcoal, alka-seltzer gold, fulvic acid, an ir sauna, and a shake plate and nrf2 activation by juicing cabbage to get sulforaphane if I have the time/energy.

It's worth it though for any improvement in my symptoms, and I've improved immensely. I'm able to work, not at a standard job, but in my own business, where I can take a few days off if I'm feeling too shitty, but being able to work at all is a huge improvement from where I started. I was also barely able to walk at first. Just getting from my bed to the bathroom was horrible.

You might be able to find a chiropractor's office with a rife machine. If you go to lymenet.org, the folks there might be able to direct you to someone local. That way, you can try before you buy. I know that feeling about being wary of snake oil, but this is the best investment I've made, totally worth every penny. It is time consuming, but I'd imagine if you're in bad enough shape, you have plenty of time due to immobility and such.

Anyways, I highly recommend it. I'm thinking that bartonella was responsible for most of the mental stuff because most of those symptoms are gone, and something else must be responsible for my head and neck and back muscle pain and spasms.

Best of luck!

[–]Node 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (1 child)

I'd recommend kratom for pain, red thai is my favorite strain right now, and it helps a ton.

By the way, how many grams do you use for pain, and what is your preferred source?

https://herbal-rva.com/product/premium-maeng-da/#reviews

Have been using these guys after trying a bunch of inferior places.

https://otiesbotanicals.com/product-category/green-leaf/

Also seems good, but have raised their prices substantially.

[–]_baal_ 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (0 children)

I usually get my kratom from www.mitragaia.com, but there are probably better sources; about half the kratom I get from them underperforms, but I make up for it by getting it for cheap, in bulk, with crypto. So, I'm often getting around a 50% discount. Their best sales are usually about 30% off, and they give you 20% off for paying in crypto. I usually take between 6 and 11 grams, depending on how bad the pain is. Lately, I've been in the 9-10 gram range.