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[–]Caessium 4 insightful - 1 fun4 insightful - 0 fun5 insightful - 1 fun -  (6 children)

It's the latter. A lot of people speaking for autistics don't have a diagnosis. They claim they don't need one because they did "extensive research" on the topic. The more insane ones claim that "it's not a disease, so medicine has nothing to do with it" or "no neurotypical specialist is competent to diagnose someone with autism." Others claim to have been misdiagnosed by incompetent doctors.

The least insane group is also the most insidious one. They claim that self-diagnosis should be valid because getting an actual diagnosis is expensive, and finding a specialist who does that is hard. Why do I consider them insidious? Because they frequently spread misinformation about the actual cost and availability of a professional diagnosis. The less actually diagnosed autistics, the more legitimacy a fake diagnosis gets.

[–]LyingSpirit472 4 insightful - 1 fun4 insightful - 0 fun5 insightful - 1 fun -  (4 children)

I agree. Shit, it's worse for people to NOT get diagnosed.

You can't afford it? On the contrary, if you think you might be autistic, you can't afford NOT to get the diagnosis. If you get a diagnosis, you'll qualify as disabled for social security. They'll get you into Section 8 housing and you get low-income, rent-controlled apartments. They'll give you food stamps to pay your food bills. Shit, SSI/SSDI flat-out cuts you a check; THEY'LL GIVE YOU MONEY IF YOU'RE DISABLED. With all that in play, FIND a way to afford it. You have to not buy that anime figurine or video game, do it- hell, put that over food and rent. Shit, you have to even sleep on the streets and Dumpster dive or shoplift food to survive, do it in order to pay for a doctor to diagnose you...hell, that's a benefit if you can't afford it. If you get thrown in jail they'll give you a psychiatrist free and you can get diagnosed that way too. There's no doctor in your town? MAKE IT to a town there is one. Take the bus- shit, if you have no other options, hitchhike if you have to. DO WHATEVER YOU CAN TO GET THAT DIAGNOSIS. And if you tried hitchhiking, tried sleeping on the streets, you can't even afford to shoplift food and you have to eat your own shit to survive, and you still can't afford the diagnosis? Just make the appointment and just...don't pay the medical bill. Not like you probably haven't paid bills in the past, and once you get the diagnosis they can't...NOT...say you're diagnosed if you don't pay.

Is it hard to get onto Social Security with an autism diagnosis? Yes, it will be very hard to get on with a diagnosis. But I can guarantee you that it's IMPOSSIBLE if you have a self-diagnosis.

[–]jet199 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (3 children)

Someone was laughing at me the other day for saying that people get registered as blind. "It's so funny you think the government has a list of all the blind people" or something like that.

Ordinary working people have no idea how the system works.

In Scotland 1 in 5 people is registered disabled. No way are that many people actually disabled, they are claiming and faking disability to top up their income and it's all quite open in the communities. But then you say this to a middle class person who has never lived on benefits or been near a council estate and they will simply be horrified you could even think such a thing and never even get ton the point the might consider it true.

[–]Haylstorm 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (2 children)

Wait why would they doubt that? Like not just for benefits and stuff but just getting help in general if you are blind? They'd probably need you to be registered.

[–]jet199 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (1 child)

It's just another world to most people.

[–]Haylstorm 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (0 children)

It's just out there. You have to register for so many things even normally? So the idea that it wouldn't be is more out there. Have they never done any paperwork ever lol?

[–]Haylstorm 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (0 children)

Honestly it CAN be hard where I am. CAHMS is notoriously slow with some people having huge waiting times or getting caught in loops of who to talk to. But in those cases that I've known the parents usually mention something is wrong and they're on the waiting list. Which is usually enough for people to accept because it's a known thing how slow/difficult it can be. Though you also don't really get a referral to CAHMS unless it's bad.