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[–]strawberryfields4evr 32 insightful - 1 fun32 insightful - 0 fun33 insightful - 1 fun -  (6 children)

I am so absolutely disgusted by all of this. We just need to encourage women away from that subreddit as much as possible. I would never recommend it, so we just need to build up supportive communities elsewhere. If we tell people to stay away I'm sure that would make them more curious of what's going on. A huge part of having PCOS for me is "feeling like a man" and feeling like a broken woman as a result of my disease. I will talk about my body parts as and when I want to.

[–]OrneryStruggle 7 insightful - 1 fun7 insightful - 0 fun8 insightful - 1 fun -  (5 children)

I want a sub about PCOS elsewhere but where?

[–]RestingWitchface 6 insightful - 1 fun6 insightful - 0 fun7 insightful - 1 fun -  (4 children)

I honestly think we need a female version of Reddit that is 100% female-run and female-centered. I know a GC version is being made, but it would be good to have one for other subs too and to have them in the same place.

[–]womenopausal 7 insightful - 1 fun7 insightful - 0 fun8 insightful - 1 fun -  (0 children)

I'm not saying anything....but watch our social media for updates.

[–]OrneryStruggle 4 insightful - 1 fun4 insightful - 0 fun5 insightful - 1 fun -  (2 children)

I agree. I would really like an equivalent of r/PCOS - I had just started reversing some of my worst PCOS symptoms with no help from my doctor, largely based on the recommendations from that sub. A lot of people need resources like it, but already so many people have left or been booted from the sub because they are evil wrongthinkers i.e. sane.

[–]RestingWitchface 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (1 child)

I don't have PCOS, but I have suffered other female-only health problems. I achieved complete recovery, but only because of the advice of online communities of women. If it were up to my doctors, I would have been on ineffective and harmful medications for the rest of my life. These networks are so essential, especially when we are so badly let down by the medical/healthcare system.

[–]OrneryStruggle 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (0 children)

Late response but yeah, it was the first thing I found that started helping me because a decade of seeking medical help was completely fruitless. I don't know what I'm going to do now that it's been taken over by men.