Living with Epilepsy - Seizures, Doctors & Anxiety - This is one of the best videos I’ve seen to describe the epileptic experience (it aligns with mine, especially with how psychedelic my seizures feel, the feeling of increasing inescapable “impending doom” & what my triggers are).

submitted by [deleted] from youtube.com

sorted by:
top
newinsightfulfun
you are viewing a single comment's thread.

view the rest of the comments →

[–]thefirststone 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (1 child)

At least the doctors believe you have a problem.

[–][deleted] 3 insightful - 1 fun3 insightful - 0 fun4 insightful - 1 fun -  (0 children)

Dude you have no idea how bad my life has been with doctors (the only reason some doctors believed is because they saw it, physically and measured it with multiple eegs). I laughed when I read your comment (just remembering some of the assholes I had to go through as a late teen who thought I was a stupid kid who wanted nothing more than to get high off benzos, which ironically, I can’t feel because of my type of epilepsy. My GABA-A receptors are mutated).

It’s like trying to find a needle in a hay stack, a good doctor who treats you with respect, listens, and pays attention to you, your weight, how you look, is willing to run different tests, and prescribe what helps.

I feel for you and hope things get better dude. I hope you find a doctor who believes or helps you! 💜