Seeking Fibromyalgia insights.

submitted by JasonCarswell from self.AskSaidIt

Thumbnail

SaidIt recently generously gave me a lot of wonderful advice about Alzheimer's Disease but sadly Ed, husband of the childlike sister of law of my up-upstairs neighbour, is not interested. You can lead a Mr. Ed to water but you can't make him drink. Beer is another thing.

Today I come to you with another issue.

I'm seeking insight for my much more receptive next door neighbour for relief with her Fibromyalgia. I meant to post this last week but stuff and cats and stuff.

Since lockdown she hadn't been getting her "vitamin coctail" shots from her doctor every couple weeks. This week she did and there's a profound difference. Nonetheless, and tips and tricks or insights will be very welcome.

The old guys around here still think she's a hypochondriac, but that's an antiquated stigma of FM which is finally eroding as more science develops and evidence that it's not all just in her head comes to light.

Thanks in advance for any help.

 

 

Fibromyalgia (FM) is a medical condition characterized by chronic widespread pain and a heightened pain response to pressure. Other symptoms include tiredness to a degree that normal activities are affected, sleep problems and troubles with memory. Some people also report restless legs syndrome, bowel or bladder problems, numbness and tingling and sensitivity to noise, lights or temperature. Fibromyalgia is frequently associated with depression, anxiety and posttraumatic stress disorder. Other types of chronic pain are also frequently present.

The cause of fibromyalgia is unknown; however, it is believed to involve a combination of genetic and environmental factors. The condition runs in families and many genes are believed to be involved. Environmental factors may include psychological stress, trauma, and certain infections. The pain appears to result from processes in the central nervous system and the condition is referred to as a "central sensitization syndrome". Fibromyalgia is recognized as a disorder by the US National Institutes of Health and the American College of Rheumatology. There is no specific diagnostic test. Diagnosis involves first ruling out other potential causes and verifying that a set number of symptoms are present.

https://en.Wikipedia.org/wiki/Fibromyalgia

 

Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals.

https://www.MayoClinic.org/diseases-conditions/fibromyalgia/symptoms-causes/syc-20354780

 

What It Feels Like When People Don’t Take Fibromyalgia Seriously

Fibromyalgia is a serious musculoskeletal pain disorder caused by misfiring of pain signals in the brain. It is an invisible illness. The intense pain brought on by the illness and the mirage of a healthy, so-perceived “normal” person often leads to anxiety and depression.

https://www.msn.com/en-us/health/medical/what-it-feels-like-when-people-don-t-take-fibromyalgia-seriously/ar-BB19vHmy

 

 

See also:

I'm seeking Fibromyalgia insights.

I'm seeking home surveillance insights.

I'm seeking VPN insights.

all 12 comments
sorted by:
top
newinsightfulfun

[–]jet199 6 insightful - 2 fun6 insightful - 1 fun7 insightful - 2 fun -  (0 children)

Everyone I've known who's improved their fibromyalgia has done it through diet and moderate exercise.

Basically eat everything anti inflammatory. Cut back processed foods, spices, red meat, caffeine, simple carbs, etc. Eat lots of vegetables. Try occasional fasting but women shouldn't fast too much.

Exercise every day you can, easy stuff like yoga, weights, walking. If you exercise too hard that will cause inflammation.

If you need to rest or are in pain don't force yourself to exercise.

Make sure you have good sleep hygiene.

There is some thought that positivity and meditation helps, this is probably also because they have a slightly anti-inflammatory effect not because it's a psychological issue.

Autoimmune disorders are far more common in women because we have a stronger immune system. They are partly a reaction against the cleanliness and safety of the modern world which is not something we have evolved for.

[–]Jesus 5 insightful - 2 fun5 insightful - 1 fun6 insightful - 2 fun -  (0 children)

Fibromyalgia is like CFS. It is a diagnosis based on symptom categories, never finding the root etiology of the problem. Look for chronic infections first; such as Borreliosis, Bartonellosis, and hundreds of other bacterial, protozoa and viral infections. The former has 100 strains in the west which can cause debilitating fatigue and joint and muscle pain leading to, in many cases after many, many years permanent neurological malignancies.

The modern diagnostic tests for 2 strains, lol. So, the other 98, good luck, you won't ever get a positive if you have it and probably be misdiagnosed and put on steroids to die a slow death.

If you have one or two of the two strains that can be tested; good luck, a bunch of criminal racketeerers, mostly dual-Israeli doctors manipulated the anti-body cuttoff range on their ELISA test, still used today, so that 85% (the sickest immunocompromised patients; with low grade infmammation, immune tolerization and anergy) WILL NOT TEST POSITIVE!!

[–][deleted] 4 insightful - 2 fun4 insightful - 1 fun5 insightful - 2 fun -  (0 children)

The first thing to do is eat the way humans should eat. This is unequivocally a natural (ideally wild, but organic is a good substitute) carnivore diet. It's not popular. It's not what people want to hear. But it's the truth. All my athletes saw huge benefits from going carnivore, and it is known to have cured people with arthritis, depression, autism, schizophrenia, multiple sclerosis, and almost every other ailment in existence.

The second thing to consider is the milieu theory. u/Tom_Bombadil is or has been recently looking into the milieu science of health, which is opposed to the microbial theory of health in that it considers that the state of the organism is more important than whatever microbe one might or might not have in them. This has humongous implications for the entire health picture and process.

Pasteur, on his death bed, said "Béchand was right and I was wrong for most of my career: the milieu is what matters and the microbe is unimportant." As such, she must look into potential toxic elements she may have acquired, such as a chronic poisoning through gut disbiosis, mold infestations, amalgam fillings (removing these is ESPECIALLY risky) for mercury poisoning - which she might have swallowed in part at some point in her life, adjuvants in vaccines, etc. The number of potential toxicities is humongous. Getting a hair sample tested for toxic and healthy mineral levels may very well be the best first step on her journey to getting better.

In closing, some people have improved their health even with stuff like multiple sclerosis using massive doses of toxic chemical antibiotics. This seems to fly in the face of the milieu view of health, although it does not: the milieu is the determining factor of health or disease, and microbes play a thoroughly secondary role. It is secondary but not irrelevant at all, however.

Anyway, getting rid of microbes can be helpful while she gets her milieu straight. Once the milieu is good, just ask the Chinese: you won't get sick, no matter what hygiene you employ or not. Anyway, instead of toxic chemical antibiotics, I use colloidal silver. I make my own, which makes it cost roughly 10 cents per $100 of commercial colloidal silver. The US$120 for the generator has paid for itself a zillion times over.

[–][deleted] 3 insightful - 1 fun3 insightful - 0 fun4 insightful - 1 fun -  (0 children)

There are some teas around that could help.

If I would be in her condition, I would try to cleanse my body as much as possible (gut, liver, kidney).

[–]yerafookincunt 3 insightful - 1 fun3 insightful - 0 fun4 insightful - 1 fun -  (0 children)

Try to get her to amend her posture while sitting if she doesn't keep her back straight. If there's CNS disturbances coming from the spine, you can only help it long term by correcting the posture that is creating weakened muscles. Anything else will be a bandaid.

[–]mainemycelium 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (0 children)

My wife is a myofascial release therapist and treats quite a few patients with FM. She said treatment with MFR is often effective. You might look to see if any John Barnes MFR or Structural Integration (Tom Myers) practitioners are in your area.

[–][deleted] 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (5 children)

A good friend of mine who has had this his whole life just recently began to smoke pot when he feels at his very worst. He claims that it has helped in those moments, but that he doesn't think it would help with the smaller pains and problems.

[–]Velocity 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (0 children)

Certain strain combinations of thc/cbd have been widely found to help with Fibro pains. Also, eating it is supposed to be more effective than smoking it.

[–][deleted] 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (3 children)

Do you think you could get him to switch to an organic carnivore diet?

[–][deleted] 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (2 children)

I doubt it, but maybe. He is, unfortunately, quite indoctrinated when it comes to mainstream scientific beliefs. It took me many years to get him to warm up to the studies done on pot, but I never stopped trying. If there are plenty of reports and papers talking about an organic carnivore diet being helpful in this regard, then I would have a better chance because, with him, I have to drown his doubts under scientific data (which I currently do not have)

I hadn't even heard of this until seeing your recent comments here. I've been looking into it, but I've found more stuff talking against it than for it. If you have relevant information, I'll gladly look into it. Not just for him, but for myself as well. I cut gluten out of my diet last year, and it has been a great experience. I've often felt like there are other things I could be doing better when it comes to my diet.

On a side note, a friend of mine with muscular dystrophy smokes often and finds it to be incredibly helpful with her PT. I wonder if she would also benefit from an organic carnivore diet.

[–][deleted] 2 insightful - 1 fun2 insightful - 0 fun3 insightful - 1 fun -  (1 child)

This is pretty much the ultimate resource, documenting how traditional carnivores were all essentially disease-free until "civilization" came to "help them out": https://www.westonaprice.org/

And then you have Mikhaila Peterson's seemingly miraculous healing: https://www.youtube.com/watch?v=7fncJdVjy5U

Dr. Shawn Baker's website on the topic: https://meatrx.com/category/success-stories/

Joe Rogan's interview with Baker: https://www.youtube.com/watch?v=Yj_Bc9hdHa0&t=1553s

And of course you will find lots of ARGUING AGAINST this way of eating: it goes against the mainstream. One is the definition of the other. But arguments are one thing, and results are another. RESULTS are the ultimate proof and arguments possibly just testify to the argumenters' ignorance.

If he likes science, he might enjoy Garry Taubes' "Good Calories, Bad Calories". I know I did. It's not dry science, more a critical overview of what's behind this and that mainstream belief about nutrition. A thoroughly excellent read and one without any bias whatsoever.

[–][deleted] 1 insightful - 1 fun1 insightful - 0 fun2 insightful - 1 fun -  (0 children)

Thank you for all of this relevant information. It will take me some time to digest this properly.